Monday, October 8, 2012

Craziness

I apologize that I haven't posted in the last few weeks, as the title of this post states, things have been...crazy!!! The last few weeks I have seriously not felt well! It has just built up over the weeks, and the pain has been building up more and more over time; between the Ehlers Danlos, the arachnoiditis, and then the osteonecrosis  the pain just kept building and I just couldn't handle it--it was hurting so bad!!!
The pain medicine and nothing seemed to be helping, and it had gotten to the point where I was just laying in bed most of the time, if I went outside just right around the proximity area of my house I'd use the walker, otherwise, it was the wheelchair. As the pain and not feeling well built up, I talked with my doctors and they were trying to adjust meds and various things to keep me comfortable.
However, there is one problem that comes sometimes with myself and taking oral medications, I have gastroparesis. So, we never know if the medicine is getting digested or just sitting in my stomach (thus which could be the reason I kept just hurting so bad)!!! The end of September, we ended up having me stay in the hospital for about 4-5 days to work on getting the pain under control via pain pump, IV, oral regimens, etc...until we were finally able to get it well enough tolerated to head back home!
Due to all of the craziness, I also had to talk with my professor at school (I had the same professor for both of my independent study classes) and withdraw for the remainder of the semester, because I knew I wouldn't be done in time! It was one of those, even though I was home and just laying in bed, sleeping, or after being released from the hospital, going over to my sister's house to have her help me throughout the day while my mom was at work and things; even though I was doing those things, when you don't feel well at all, you're in horrible pain, or anything like that, you're definitely not in the mind frame to focus and do school work. So, I am working on the withdrawing process.
So now, I am home resting and taking it easy. I have amazing family and friends who help me so much and are always there to talk to! And over the last like week, there's been this sweet, 'secret', person who has left little treats and surprises at my doorstep each day for me--and I hope they know that I want to thank them for that; and thank all my family and friends for their help, love, and support!!!

1 comment:

  1. Oh, Miss Jackie. I love you. :) See you soon.

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